Introduction

My name is Catherine Cox; I am the Head of Communication and Carer supports in Family Carers Ireland. I am working with researchers from the College of Psychiatrists of Ireland and with the UCD School of Nursing, Midwifery and Health Systems to undertake an exploration of the health and wellbeing of family carers in Ireland.

We would like to invite you take part in our research study. Before you decide we would like you to understand why the research is being done and what it would involve for you.

What is this research about?

This study aims to explore the experiences of Family Carers who provide regular unpaid personal help for a friend or a family member with a long-term illness, health problem or disability.

Why have you been invited to take part?

We are inviting you to take part in this research because you are providing regular unpaid personal help for a friend or a family member with a long-term illness, health problem or disability.

PLEASE DO NOT COMPLETE this survey IF you are a care professional, for example, a nurse working in a nursing home, or a paid home help.

Why are we doing this research?

We are conducting this research so that we can better understand your experiences of looking after someone with a mental and/or physical disability or other condition. This will allow us to form a clear picture of the issues and concerns affecting Family Carers. It will also assist us in understanding the supports that Family Carers require in your caring role. It is intended that the results of this study will inform government policy and help us to work on your behalf to improve the services and supports that are available to you.

Who is conducting this research?

A team of researchers from the College of Psychiatrists of Ireland and the School of Nursing, Midwifery and Health Systems at UCD are conducting the research in collaboration with Family Carers Ireland.

What are you being asked to do?

You are being asked to complete this online survey on or before Monday the 7th of January. The survey will take approximately 20-30 minutes to complete. If you need any help to understand or complete this survey, please contact us and we will assist you.

How will we protect your privacy?

All the information you provide will be strictly confidential. Your survey return will be given a special code so that it cannot be traced back to you by anyone. The answers in your survey will be inputted into a computer with all the other surveys. These answers will be encrypted and stored on a password protected computer.

Can I change my mind from participating?

Your participation is completely voluntary. However, once you have returned the survey to us you cannot withdraw as the surveys are anonymous.

What are the risks of taking part in this study?

There are no direct risks to you associated with taking part in the study. Your participation or non-participation in this study will in no way impact on your relationship with Family Carers Ireland. If you become upset or would like to talk to someone about any of the issues raised in this survey please see the contact information below and the resource links and free phone helpline numbers at the end of the survey.

What are the benefits of taking part in this study?

We are doing this research so that we can better represent you in our submissions to policy makers and government. The results of this survey will help to shine a light on caring and help raise awareness of the everyday challenges that Family Carers face.

How will I find out what happens with this project?

The results of this survey will be made available on the Family Carers Ireland website (www.familycarers.ie) and on the website of the College of Psychiatrists Ireland as well as the School of Nursing, Midwifery and Health Systems and UCD.

Contact details for further information If you need any help to understand or complete this survey, please contact us on our:

 

National Freephone Careline

1800 24 07 24

 

Thank You

Catherine Cox

 

Are you a family carer who provides regular unpaid personal help for a friend or a family member with a long-term illness, health problem or disability? (Including Carers receiving Carer's Allowance, Carer's Benefit etc.) Required